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key stakeholders, such as teachers and employers, frequently lack knowledge about
the health needs of persons with albinism. Some individuals with albinism also have
gaps in their awareness of how to protect themselves from ultraviolet radiation. Even
where understanding of the existing health needs of persons with albinism among
different stakeholders is high, the information received by the Expert suggests that
levels of knowledge about how climate change may exacerbate those health issues or
bring new health concerns is low.
B.
Exposure to disasters and extreme weather events
29. Climate change has increased the frequency and intensity of climate and weather
extremes, including heatwaves, heavy rainfall events, drought and weather that causes
wildfires. Adverse impacts from tropical cyclones, with related losses and damages,
have also increased due to sea level rises. 24 A submission received from Japan referred
to heatwaves becoming commonplace; in 2019, an intense heatwave killed over 100
people and led to thousands being hospitalized. A recent report found that, over the
past 50 years, a disaster related to either a weather, climate or water hazard has
occurred every day, on average, killing over 100 people globally and causing
$202 million in losses daily. 25 Information received by the Expert highlighted that, in
the United Republic of Tanzania, agricultural livelihoods are being threatened by
increasing temperatures, longer dry spells and unpredictable and intense rain events.
In Malawi, the impact of climate change over the p ast 30 years has been catastrophic.
In March 2023, the country was hit by Cyclone Freddy, the longest-running cyclone
on record, and, in 2022, by two other cyclones.
30. Persons with disabilities are disproportionately at risk of the health
consequences of extreme weather events – and persons with albinism are no
exception. Specific data on health outcomes for persons with albinism is scarce, but
the mortality rate of persons with disabilities across many disaster situations is up to
four times higher than that of persons without disabilities. 26 During and after disaster
situations, persons with albinism, like persons with disabilities more broadly, are at
increased risk of further disability and adverse health effects compared with the
general population. 27 Some persons with albinism also have additional health
conditions, which increases their vulnerability in disaster situations.
31. Like other persons with disabilities, persons with albinism are often unable to
prepare effectively for disasters or keep themselves safe when disasters occur because
of barriers located in the environment around them. Early warnings about disasters in
written or other visual formats (e.g. warning signs containing flashing lights) are not
accessible to persons with albinism who have visual impairments. In addition, during
disaster situations, persons with albinism may be unable to safely navigate
environmental hazards to find shelter because of their visual impairment. At the same
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24
25
26
27
23-13701
Intergovernmental Panel on Climate Change, “Summary for policymakers”, in Climate Change
2022: Impacts, Adaptation and Vulnerability – Contribution of Working Group II to the Sixth
Assessment Report of the Intergovernmental Panel on Climate Change (Cambridge, Cambridge
University Press, 2022), pp. 3–33. Available at www.ipcc.ch/report/ar6/wg2/downloads/report/
IPCC_AR6_WGII_SummaryForPolicymakers.pdf.
World Meteorological Organization, The Atlas of Mortality and Economic Losses from Weather,
Climate and Water Extremes (1970–2019) (Geneva, 2021).
Takashi Izutsu, and others, Disability-inclusive Disaster Risk Reduction and Humanitarian
Action: An Urgent Global Imperative – Report of the United Nations Department of Economic
and Social Affairs Public Forum.
Building Disability‐inclusive Societies in Asia and the Pacific: Assessing Progress of the Incheon
Strategy (United Nations publication, 2018).
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