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VIII. Good practices
61. Most initiatives that help to mitigate the impacts of climate change or concern
climate action and that are applicable to persons with albinism also target persons
with disabilities more broadly. The United Nations Framework Convention on
Climate Change has adopted a four-year action plan under the Glasgow work
programme on Action for Climate Empowerment, which includes the inclusive
participation of persons with disabilities, as well as other groups such as women,
children and Indigenous Peoples (see document FCCC/CP/2022/10/Add.2). Some
States offer disability-related social protection schemes, which can help to alleviate
poverty and indirectly aid the purchase of sun protection products. Some States also
have specific policies or laws that serve to give priority to persons with disabilities in
disaster management and response. Persons with albinism also benefit from initiatives
designed to educate the general population about climate change and support
protective action, provided that such initiatives are made accessible to them. The Skin
Cancer Foundation maintains a list of recommended products for ensuring reliable
ultraviolet radiation protection, including sunscreen, clothing, and window and
outdoor shade products, although it is mainly focused on the United States of
America. 76 The Global Albinism Alliance referred to the SunSmart smartphone
application, launched by the World Health Organization, the World Meteorological
Organization, the United Nations Environment Programme and the International
Labour Organization. The application integrates country -level data sources on
weather and ultraviolet radiation levels to provide users with five-day forecasts. 77 It
highlights when sun protection is required and summarizes health advice in an easy to-understand format. The Expert was also able to identify some promising practices
by States and civil society actors that are specifically for persons with albinism.
A.
Availability of low-cost and effective sun protection products and
access to health care
62. States must ensure that persons with albinism can gain access to health services
that can diagnose, monitor and treat health complications that arise from extreme sun
exposure, such as skin cancer. States must also ensure that persons with albinism can
easily gain access to free or low-cost, effective sun protection products at all times.
These products include high sun protection factor sunscreen of 50 and above and
clothing such as long-sleeved tops and wide-brim hats.
63. Some Governments are providing free sun protection products and health
screening to persons with albinism, and the Expert received submissions to this effect
from the African region. 78 In Kenya, the National Council for Persons with
Disabilities has been providing free sunscreen to persons with albinism through
public hospitals, as well as long-sleeved T-shirts and wide-brim hats. The programme
is decentralized to hospitals at county level in order to provide better access to persons
with albinism living in different regions of Kenya. According to a submission
received by the Expert, the Governments of Malawi and the United Republic of
Tanzania have partnered with the organization Standing Voice on a skin cancer
__________________
76
77
78
23-13701
See www.skincancer.org/recommended-products/.
WHO, “SunSmart Global UV App helps protect you from the dangers of the sun and promotes
public health”, press release, 21 June 2022. Available at www.who.int/news/item/21-06-2022sunsmart-global-uv-app-helps-protect-you-from-the-dangers-of-the-sun-and-promotes-publichealth.
In some States, free sunscreen may be provided to persons with albinism by region al or local
governments. In previous research carried out by the Expert , it was found that the Brazilian
municipality of Salvador has been distributing free sunscreen since 2006.
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