A/78/167 include issues of accessibility, including with regard to venues hotels and transport networks in the cities where such meetings are held. Other issues, such as lack of funding for grass-roots organizations in the global South, lack of formal official papers for groups displaced by climate change and problems with regard to securing visas, all contribute to lower participation by those individuals most affected by climate change, including persons with albinism. The Special Rapporteur on the promotion and protection of human rights in the context of climate change has drawn attention to a “participation disconnect”, meaning that those who are most affected and suffering the greatest losses are the least able to participate in current decision making within the Conference of the Parties to the United Nations Framework Convention on Climate Change (see A/77/226). Persons with albinism are among those most affected by this participation disconnect. 58. To ensure that persons with albinism are adequately represented in climate action across different forums, it is essential to include them in climate dialogue beyond that focused on disability. The voices of persons with albinism should be integrated into dialogue and initiatives taken by other groups, such as those within existing United Nations Framework Convention on Climate Change constituencies, including those representing Indigenous Peoples’ organizations, women and gender issues, and young people. Like other social groups, persons with albinism possess heterogeneous backgrounds across multiple intersectional characteristics. When persons with albinism are able to share their perspective alongside members of other social groups (e.g. women and young people), climate dialogue will be enriched. 59. According to a recent systematic analysis, only 45 State parties to the Par is Agreement currently refer to persons with disabilities, persons with health conditions or those with chronic illnesses in their climate adaptation policies. Moreover, where such references are made, they are cursory in nature. It was also reported that no State parties to the Paris Agreement currently refer to persons with disabilities in their climate mitigation policies. 72 Persons with albinism, like persons with disabilities more broadly, are disproportionately affected by climate change and must be adequately considered in national climate policies. 60. Data is needed to facilitate the effective inclusion of persons with albinism in climate action. At the current time, data on the impact of climate change on persons with disabilities, in general, is deficient. 73 Current methods of measuring disability in censuses and national surveys do not include specific reference to persons with albinism. 74 States should consider the use of additional questions to gather data on the situation of persons with albinism, including with respect to climate change. For example, in its 2019 census, the Government of Kenya asked an additional question about albinism after the standard disability module. 75 __________________ 72 73 74 75 18/23 McGill Centre for Human Rights and Legal Pluralism and the International Disability Alliance, “Status report on disability inclusion in national climate commitments and policies” (June 2022). Available at https://www.internationaldisabilityalliance.org/sites/default/files/drcc_status_report_ english_0.pdf. Aleksandra Kosanic and others, “An inclusive future: disabled populations in the con text of climate and environmental change”, Current Opinion in Environmental Sustainability, vol. 55 (April 2022). The Washington Group short set of questions on functioning are a set of survey questions designed to estimate the number of individuals with disabilities in a population. The questions are grouped into six domains: seeing, hearing, mobility, cognition, self -care and communication. Each domain has a set of questions about the individual’s ability to perform specific activities related to that domain. OHCHR, “Counting groups left behind: a stellar step for inclusion in Kenya”, 27 November 2019. Available at www.ohchr.org/en/stories/2019/11/counting-groups-left-behind-stellar-stepinclusion-kenya. 23-13701