A/78/167
prevention programme that has reached a collective total of over 8,500 persons with
albinism across both countries. The programme ensures that persons with albinism
receive a free six-month supply of sunscreen and other protective wear, as well as
skin screening and treatment for precancerous lesions. In addition, financial
investment is made to support locally based producers of sun protection products. In
the United Republic of Tanzania, Standing Voice is also supporting the local
production of sun protection products, as well as livelihoods, through a community
centre that supports persons with albinism and their families to make wide -brim hats,
with over 9,500 of them being produced and distributed annually. In South Africa, the
National Departments of Health and Social Development have a budget designated
for persons with albinism that can cover essential health services. However, there is
a need to strengthen implementation of those services, in parti cular at the provincial
level. Outside of the Africa region, in countries such as Türkiye, some State support
has been provided for sunscreen provision, and some government agencies provide,
albeit modest, payments for basic visual aids.
64. Wider civil society is also active in ensuring that persons with albinism are protected.
The organization Beyond Suncare produces sunscreen that is tailor-made for persons with
albinism.79 Similar activities are carried out by the Fondation Pierre Fabre. 80 According to
a submission received by the Expert, the NGO Valeur Albinos provides sunscreen and other
protective products to adults and children in remote areas of Benin and raises awareness of
their correct usage. It also pays for persons with albinism to gain access to skin screenings,
eye tests and other prescribed tests and medication.
65. The Global Albinism Alliance, in conjunction with the Expert, recently called
for broad spectrum sunscreen to be added to the World Health Organization Model
List of Essential Medicines. 81 In addition, the Global Albinism Alliance is actively
engaging with the World Health Organization, as well as with international
multi-stakeholder health forums, to raise awareness of the global issue of skin cancer
risk for persons with albinism.
B.
Capacity-building and funding
66. Persons with albinism must be involved in all aspects of climate action. The
organization Africa Albinism Network builds the capacity of civil society
organizations working on albinism in the region to engage with policymakers
nationally and participate in high-level international human rights meetings, such as
the Conference of State Parties to the Convention on the Rights of Persons with
Disabilities. This widens the opportunities for persons with albinism to raise issues
related to climate change and thus participate in climate change action. They also
support stakeholders to implement the African Union Plan of Action on Ending
Attacks and Discrimination against People with Albinism, 82 which is aimed at
countering increases in violence and discrimination that may arise owing to climate
change impacts. 83
__________________
79
80
81
82
83
20/23
Yolanda Gilaberte and others, “Evaluation of the acceptance and efficacy o f a bespoke sun
protection package for persons with oculocutaneous albinism living in Malawi”, International
Journal of Dermatology, vol. 61, No. 3 (7 September 2021), pp. 352–360.
See www.fondationpierrefabre.org/en/our-programmes/tropical-dermatology/prevention-andtreatment-for-people-with-albinism/.
See https://cdn.who.int/media/docs/default-source/essential-medicines/2023-eml-expertcommittee/applications-for-addition-of-new-medicines/a43_sunscreen.pdf?sfvrsn=3533e0d4_2.
Available at www.ohchr.org/en/documents/tools-and-resources/au-plan-action-ending-attacksand-discrimination-against-persons.
See https://africaalbinismnetwork.org/wp-content/uploads/2023/04/English-AAN-Pilot-Report2021-2023.pdf.
23-13701
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