A/78/167
I. Introduction
1.
The present document is the report of the Independent Expert on the enjoyment
of human rights by persons with albinism, Muluka-Anne Miti-Drummond. It is
submitted pursuant to Human Rights Council resolutions 28/6 and 46/12.
2.
In preparing the report, the Expert sent a questionnaire on 23 March 2023 to
various stakeholders, including Member States, civil society organizations and
persons with albinism. The Expert received written submissions from and held virtual
consultations with 28 stakeholders, the majority of whom were academics and civil
society organizations.
3.
The report is focused on the impact of climate change on persons with albini sm,
given their potentially fatal susceptibility to skin cancer, mostly owing to lack of or
inefficient protection against harsh ultraviolet rays or sun exposure. It also contains a
summary of some of the key activities of the Expert during the reporting p eriod.
4.
Persons with albinism are a unique group whose human rights issues have
generally gone unnoticed for centuries, resulting in deeply entrenched stigma,
discrimination and violence against them across various countries. The complexity
and uniqueness of their condition means that their experiences significantly and
simultaneously touch on several human rights issues, including, but not limited to
discrimination based on colour, discrimination based on disability, reasonable
accommodations and adaptations in terms of access to education, the right to the
enjoyment of the highest attainable standard of health, and the right to life and bodily
integrity. Full enjoyment of these rights should guarantee to persons with albinism
protection against harmful traditional practices, such as ritual attacks and killings,
trade and trafficking in body parts for purposes of witchcraft, and the abandonment
of children.
5.
Climate change further impinges on the enjoyment of rights by persons with
albinism. The Expert hopes that the present report on climate change and persons with
albinism will provide the basis for further in-depth studies and analysis on the impact
of climate change on persons with albinism, as more pertinent information may
become readily available in the future.
II. Activities of the mandate holder
6.
During the period from November 2022 to June 2023, the Expert undertook
various activities, some of which are highlighted below.
7.
Capacity-building activities included human rights training for albinism groups
in Zambia, organized in collaboration with Amnesty International, in January 2023.
It was followed by a visit to the session of the African Committee of Experts on the
Rights and Welfare of the Child for the Zambian groups in Maseru, in April. Together
with the civil society team of the Office of the United Nations High Commissioner
for Human Rights, the Expert carried out an online training session in December,
followed by an in-person training session, in Geneva, in March, for leaders of
European albinism groups to strengthen their capacity to engage with the United
Nations. Human rights training for albinism leaders from Francophone African
countries was organized in conjunction with the Fondation Pierre Fabre, in Abidjan,
Côte d’Ivoire, in June.
8.
In February, the Expert spoke at a conference on albinism hosted by the Africa
Albinism Network, in the United Republic of Tanzania; gave a virtual presentation to
students of the School of International and Political Studies, along with the Global
Albinism Alliance; and participated in a meeting on children with disabilities in
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